Support, advice and shared experiences take centre stage at facial palsy event

People living with facial palsy and their families came together at our hospital earlier this month for a special event offering expert advice, practical support and the opportunity to connect with others who share similar experiences.

The free Living with Facial Palsy event, organised by Facial Palsy UK in collaboration with Queen Victoria Hospital Charity, welcomed around 40 attendees. The day combined expert-led information sessions with opportunities for people affected by facial palsy to meet others who understand the challenges they face.

QVH, which hosted the event, is home to the UK’s first and largest specialist facial palsy service, treating patients with facial palsy and facial paralysis from across the country.

Attendees heard about a range of topics including psychological therapy, eye care, facial palsy surgery and the use of botulinum toxin. Interactive sessions on compassion-focused therapy and facial massage also gave people practical techniques and advice to support their wellbeing.

The event was organised by Catriona Neville, Extended Scope Practitioner in Facial Palsy at Queen Victoria Hospital and leader of Facial Palsy UK’s East Grinstead support group, alongside co-leader Carol Compagnone.

Catriona said: “One of the most rewarding things about leading the East Grinstead support group is seeing the difference it makes when people realise they are not alone. Friendships are formed, confidence grows and people leave with practical advice as well as a stronger support network.

“For many people, one of the most difficult aspects of facial palsy is feeling isolated. Bringing people together gives them the opportunity to share experiences, learn from one another and connect with people who truly understand the challenges they face.

“It was also wonderful to welcome partners, family members and carers. Facial palsy can have a significant impact on daily life and these events help those closest to patients gain a deeper understanding of the condition and the support their loved one may need.”

One attendee said: “It is important to encourage those that we love and support to attend to help not only build communities but understand not just facial palsy but how it affects our lives and those that have it. Seeing other people with facial palsy and how they have lived with it is empowering.”

For many attendees, the event provided a valuable opportunity to learn more about facial palsy, share experiences and connect with others who understand the challenges of living with the condition.

Anyone interested in joining a future support group can email support@facialpalsy.org.uk

Pictured: Catriona Neville and Charles Nduka, Consultant Plastic Surgeon at Queen Victoria Hospital and Founder of Facial Palsy UK, speaking at the Living with Facial Palsy event.